So Little Time

Cake but no presents

July

Have you heard about the trend of parents asking for donations rather than gifts/MORE STUFF for their kids’ birthday parties? It’s perhaps the first hyper-parenting trend sans excess. After all, do your kids really need another stuffed animal? On the other hand, shouldn’t kids be kids? (just with a little less?) Quite honestly, I’m jealous of some of the gifts my kids’ friends get—it’s nicer than what I have: think ipods; digital cameras; Broadway tickets; and even the new apple phone.

Still: all the gifts in the world can’t compete with what I really want: a cure for an illness someone close to me suffers from. So, with my birthday coming up, I ask any of you of my faithful blogsphere to check out an unknown orphan disease called Glycogen Storage Disease. Orphan illnesses have no big names or big money or big drug companies behind them and so need our support more than ever. Thanks in advance for your thoughtfulness.

This entry was posted on Tuesday, July 31st, 2007 at 9:57 am by Jeanne Muchnick.
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3 Responses to “Cake but no presents”

Rona July 31st, 2007 at 5:10 pm
Big or small, I’m sick of gift wishlists. Most people now either give my kids gift cards or buy things off their amazon.com wishlists. My sister-in-law always asks specifically what my kids want and by that. One “friend” registered at Toys ‘R Us for her daughter’s third birthday! Phooey. Gifts should entail choosing just the right item for someone, and that may be something the person never even thought they’d want. Where’s the love in a thought-free gift? But GSD? That’s a great organization, and everyone who reads this should donate something.
Maria August 8th, 2007 at 12:47 pm
Hi i don’t actaully know why i read the blogs on this site as im 15 and not a mother hmm i guess it holds some interest
i have looked up that disease you were telling about and its quite interesting ive been googling it its all about glycogen which was glucose before it was glycogen which is sugar basically the disease mucks up everything in the body im sure you have researched this anyway and ive read there are no cures yet im sure there may be in time Quote
‘IS THERE A CURE FOR METABOLIC DISEASE?
A decade ago the answer to this question would be no. However, recent advances in research mean that for a handful of conditions, treatment is on the horizon through gene therapy. This means there is a brighter future for many children where there was no hope before, and within the next 20 years, the outlook should be even more promising. ’

There are different types aswel so many different people are affected in different ways

When i leave school i will be studying biology to get a A level in.

Happy birthday
i hope your wish comes true
karen August 21st, 2007 at 2:40 am
I think that is so thoughtful. I’ve done it myself – for my daughter’s first birthday. The last thing I needed in my little house was more baby stuff. I had everyone make donations in her behalf to the Red Cross. I will probably do that until she’s able to make the decision herself – and if she chooses to go with charity, great – if she wants presents that’s great too.

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